Alivia's Berlin

Alivia's body was about ready to give up so the doctors decided that it was time for her to get a device called a Berlin heart witch is not yet approved by the FDA. Alivia had has been on the Berlin for over a month now and she continues to better and better shes now awake with no support with her breathing but she had a lot of ups and downs to get here today she was supposed to go in a wagon ride but she only ended up sitting in the wagon in her room hopfuly when she wakes up from her nap she will be able to go for her wagon ride. Although Alivia is getting better there are also a lot of things that arent going to well, the last few days she has been vomiting a lot and just not acting herself tired a lot more and a lot for fussier they decided to go up on one of her meds and we are hoping that with the next 2 days she starts to act some what back to her normal self. Her dad and I are hoping that the doctors will find her a heart soon so we can take her home and let her live as much as a normal life as possible but it seems like she will never find one its been 3 months since she has been on the transplant list shes even on the highest one but it takes time we are trying to take advantage of this time and try to prepare everything for when we go home since we can't really have her around smokers animals sick people or people around sick people we really have to find our own place and car but that also doesn't seem like that is ever going to happen niter one of us can find a job and we applied for ssi but they have been giving us the run around for a year we are hoping we can give Alivia the best when she goes home but we are putting trust in God and dealing with one thing at a time.

princess and her daddy

mommy and Alivia

sisterly love

starting to feel better

Sitting up in her chair eating mommys phone

were her berlin goes inside her

it took 3 weeks but we got her to smile again

big sister n livia we finally got her siting up n eating

Angel (angelica) happy to go see her baby sister

she loves her big sister

laying down

siting in her favorite rocking chair with her big sister

waiting in her wagon

playing with sister

Cardiomypithy

On October 8th I belive we took Alivia to the hospital

Which sent us to another hospital wich sent us to Standford hospital

anyways Alivia's heart is really sick and enlarged and she was more then likly born with it.

She has Idoipathic dialated Cardiomyopithy witch means bascily she has a really big heart for an unknown reason. They are kind of learning of this being caused genicly. She stayed in the hospital until October 28th. The doctors said when she 1st came in she was to sick for a heart transplant and now she isn't sick enoff . They say that eventualy her heart will just get worse again and she will get it. I'm not looking to forward because on avrage people only live 10-18 years after the transplant. Well at the moment we are home and Alivia seem,s happier and healthier then before she was sick, shes also taking 7 medication and some of them are two times a day.

Aliva's 4 months old

today she got her 4 months shots

every time she gets shots she does one of thoes silent cries it breaks my heart

my poor baby girl. On the other hand last night I put one of the outfits my aunt mara bought for Alivia and it fits and looks so cute heres a picture

besides that shes getting even better at rolling over and sitting up

now i can give her rice cereal or oatmeal

I cant believe how big the baby is

My Princess can roll over

Im so proud

today was her 1st time

she always used to get stuck because her elbow

but not anymore

its amazing how fast they grow and how quick she learns

she can almost sit up I wonder then she can finally do that well i'll keep you updadted

lol she looks a little funny but this was right after she did it

after that she got hungry

My baby girl is sick

I don't know what to do

The doctor told me to giver her desiten and pedialite

well shes gone through 3 jugs of pedialite and 2 tube of desiten

I turnt a stool sample in on thursday snd still there are no results

I'm calling back in about an hour and I'm going to make an appointment

it sucks having a sick baby I havn't been to school because I can't leave my baby while shes sick

hopefully I get a call from the dr. saying shes fine so me and her can go back to school tomorow

A fun Day with Alivias Nani

About September 5th

me and Alivia spent the day with her Nani and god brother Nathyn

were trying to spend as much time with her before her Nani and Papi move to

Germany. Alivia and I are going to miss them but were proud that her Papi is

serving our country. Anyway we went to walmart to get a few things and then we priced her ears

I was so nervous.

After that we stoped by my Auntie Janet(Alivia's Nani's mom's)

And then stoped by Misy's house.

My princess cried a little, it kinda made me regret it, but she look even more beautiful.

I really don't care what we did that day im just happy she spent it with her godmother and god brother to bad Papi wasn't there,hes still in basic traing.